The way we think, the things we do and the things we should not be doing, could accumatively be affecting the lives of some of some of us suffering f...
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Great advances and achievements have been made for mankind in all all works of life including medicine. They as absolutely marvellous you say but what about those of us who are still getting calls from the 'unwelcome visitor' (tuv). The unwelcome visitor can arrive without any prior warning, stays as long as he wants and only goes when he wants to. Yes, here we are in the 21st century and we are still receiving lightning, unannounced visits from (tuv). These visits occur both by day and by night. He doesn't just pay us a visit at home, at work, or in the street, but literally anywhere.
He doesn't care if we are on our own or surrounded by others he just arrives. Sometimes he gives us prior warning though many times not. Whether we are just watching the television on our own, travelling on the tube, dining, discussing work projects with colleagues, or when we are fast asleep, (tuv) leaves his calling card.
When you think (tuv) he is coming he stays right away, but as soon as you drop your guard he arrives for a stay. Sometimes you'll bump into him in the middle of the street, just like an old enemy you'd least want to meet. (Tuv) can arrive at your place of work and stay all day long, causing people to ask "are you all right, are you sure there's nothing wrong?"
(Tuv) scares the living daylights out of us with one of it's visits, and it's just not fair that he is allowed to act like this, is it?
We wake up at night and feel (tuv's) presence there; we call out something obscene, and look around and stare. He uses electricity for which there is no bill, no standing order, no cash required at the till. (Tuv) is on direct supply without asking for it, when right out of the blue you are into a fit, it's just not fair is it? If we are really bad we can awake both by day and by night in a hospitals Accident and Emergency ward.
Yes we are talking about epilepsy, which can cause one to scream out all sorts of gobbledygook, grimace, and to gesticulate dramatically when we enter our 'unknown world of horror' This doesn't only scare the living day lights out of us, but does likewise to our nearest and dearest. God only knows what goes through the minds of the strangers who are in our vicinity when all this occurs?
This illness at it's worst can inhibit us from gaining employment. This simply prejudices employers from employing us. Epilepsy is a completely unknown world to them. When you mention the E word they picture someone, through their ignorance biting their tongues or carpets. This is pure lack of knowledge of the unknown also puts them against of us for fear of what their work force might think. At it's best we are more than likely to get positions of employment of an inferior nature - forget how good your mathematics and command of the English language is, that you might be extremely I.T. literate, that you are very diligent, and that you are punctual at work, you my friend whether you like it or not, you have been labeled, and labeled for life.
Your personal life is affected dramatically in so many different and very simple ways. Forget about not being able to drive a car or riding a Harley-Davidson, that is not even a must, just an inconvenience to our mode of travel.
It is of being frightened to death when like a bolt out of the blue (sometimes with and sometimes without an aura), we travel at the speed of light from the conscious to the subconscious, to a land of intense fear to us. I have 'visited' this horrific place for a great many years now. This nightmare is nigh on if not completely impossible for us to ever remember.
This unknown land is instantly recognised by us when we have epilepsy, and after setting the fear of God within us, we return back to the normal conscious world, now however we are not just scared of what has just happened to us, but of what could repeatedly happen to us, now that the 'electric storm' has just begun.
It is of being sometimes too scared to go to school, walk down the road, travelling by bus or tube, being at work, going to the dining room at work or going to have a burger in the high street amidst strangers. Trying to judge if we will be well enough to go shopping, have a haircut, have a bath, answering a telephone, let alone going on holiday, just to name a few of so many simple things (that never even enter your mind) and that we have to think about many times before we even attempt to do them, as we live in this valley of fear, called epilepsy.